It was with great pleasure that I read the UK government’s “Equity and excellence: liberating the NHS” white paper. It enshrines the principle of patient-controlled medical records with wonderful phrase “nothing about me without me”. 2.1 The Government’s ambition is to achieve healthcare outcomes that are among the best in the world. This can only be [...]
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It is my pleasure to announce that Channel 4’s investment arm, 4iP, has invested in Patients Know Best. Dan Heaf blogs beautifully, and the full post is worth reading: To my mind Cambridge based Patients Know Best is a game-changing, noise making and innovative web start-up that sets out to fix a vital yet broken [...]
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Last week, over lunch with a few friends, we discussed how excited we are by the UK’s new government. Some really interesting people are in power, with two young dynamic leaders at the helms of the Conservative and Liberal Democrate parties. Then they issued their policy document, The Coalition: our programme for government. On page [...]
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Watch how few people use stairs at the beginning of this video. And then watch what happens when they make the stairs into a piano. This reminds of Rajiv Mehta’s description of his work on Zume Life in the PKB podcast. It’s not particularly helpful to point out to people that why you’re not doing [...]
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“Can a patient invite another patient to look at their record?” This question really made me pause. The answer is definitely “yes”, because each patient using Patients Know Best is able to invite anyone they want to look at their records. But when we initially designed the platform the assumption was that patients would use [...]
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William Heath from Mydex pointed out to me that both Labour and the Conservatives supported the principle of patient-controlled medical records: We will explore how to give citizens direct access to thedata held on them by public agencies, so that people can use and control their own personal data in their interaction withservice providers. Labour [...]
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On Thursday 8th of April, we held an education event at the Royal Society of Medicine. The speakers included Dr Richard Smith, our Chairman, and me, Dr Mohammad Al-Ubaydli. Richard, as former editor of the British Medical Journal, spoke about the important of and evidence base for using new technology to allow patients to manage [...]
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The Department of Health issued updated guidance on patient access to health records today. My thanks to Mark Duman, of the Patient Information Forum, for bringing my attention to this. Full details are on our personal health records wiki, but the main are take-homes are clear: the patient is entitled to a copy of their [...]
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We are getting some nice coverage about the Stelios Award. First to cover is the The Deaf Blog, a blog about the achievements of people with hearing difficulties.
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Demos is one of my favorite think tanks, a left-of-center research institution responsible for many of Tony Blair and New Labour’s policies. Peter Bradwell and his colleagues are running an interesting research project through a series of focus groups with citizens in different parts of the UK. One of the topics is how personal medical [...]
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Dr Mohammad Al-Ubaydli
Dr Richard Smith