Cognitive surplus One of the great pleasures of living in London is that a friend can email you (in this case from Salamanca) and say: “Hey, did you know Clay Shirky, a world famous internet guru, is speaking at LSE in 60 minutes?”—and you can drop everything, go, and be thrilled. I knew about Shirky [...]
Filed under: Business, Economics, Society, Technology, Uncategorized | Leave a Comment »
On Thursday 8th of April, we held an education event at the Royal Society of Medicine. The speakers included Dr Richard Smith, our Chairman, and me, Dr Mohammad Al-Ubaydli. Richard, as former editor of the British Medical Journal, spoke about the important of and evidence base for using new technology to allow patients to manage [...]
Filed under: PKB Lecture, Society, Technology | Leave a Comment »
Demos is one of my favorite think tanks, a left-of-center research institution responsible for many of Tony Blair and New Labour’s policies. Peter Bradwell and his colleagues are running an interesting research project through a series of focus groups with citizens in different parts of the UK. One of the topics is how personal medical [...]
Filed under: Meeting, PKB Lecture, Society, Technology | Leave a Comment »
My father in law sent me this video recording of the wonderful BBC television show, Jimmy’s Food Factory. See if you can figure out why.
Filed under: Society, Technology | Leave a Comment »
I wrote a blog some six months ago about how a talk by Harold Shipman’s successor had convinced me that I should get access. I do most of my work online, complete my tax return online, make all my travel arrangements online, bank online, and buy books and CDs online, so surely I should be [...]
Filed under: People, Society, Technology | 2 Comments »
It is an honour to announce that we are one of the five finalists for The Institution of Engineering and Technology’s Innovation Awards. There were 400 entries in total this year and we are finalists for the start-ups award. This is a great endorsement for the security of our software, its integration into the NHS, [...]
Filed under: PKB News, Technology | Leave a Comment »
I am delighted to announce that Dawson King, our Chief Technology Officer, has been elected to the committee that sets the next version of the data standard that Google, Microsoft, CVS and others use to share patient data. The Continuity of Care Record (CCR) is an elegant but sophisticated data standard that allows sharing of [...]
Filed under: PKB News, Technology | Leave a Comment »
We had a great time presenting at the 10th Cambridge Enterprise Conference and Silicon.com interviewed Dawson King for a 7-part series: The hottest tech out of UK’s Silicon Valley. The other six companies higlighted were: Cronto: produced software for mobile phones that will check whether a banking transaction is genuine Emotion AI: develop technologies to [...]
Filed under: PKB News, Press, Technology | Leave a Comment »
This article was originally published in Genome Medicine on 23rd July 2009: http://genomemedicine.com/content/1/7/73/
Mohammad Al-Ubaydli1 and Rob Navarro2
1UCL Centre for Health Informatics and Multiprofessional Education, Archway Campus, Highgate Hill, London N19 5LW, UK
2Sapior, 16 Byron Avenue, London E18 2HQ, UK
Genome Med 2009, 1:73doi:10.1186/gm73
The electronic version of this article is the complete one and can be found online at: http://genomemedicine.com/content/1/7/73
Published: 22 July 2009
© 2009 BioMed Central Ltd
Abstract
There is value to patients, clinicians and researchers from having a single electronic health record data standard that allows an integrated view, including genotype and phenotype data. However, it is important that this integrated view of the data is not created through a single database because privacy breaches increase with the number of users, and such breaches are more likely with a single data warehouse. Furthermore, a single user interface should be avoided because each end user requires a different user interface. Finally, data sharing must be controlled by the patient, not the other end users of the data. A preferable alternative is a federated architecture, which allows data to be stored in multiple institutions and shared on a need-to-know basis. The data sharing raises questions of ownership and stewardship that require social and political answers, as well as consideration of the clinical and scientific benefits.
Filed under: PKB publication, Privacy, Society, Technology | Tagged: LinkedIn | Leave a Comment »
I have long been a fan of the think tank Demos so it is a pleasure to be part of their research on patient access to medical records. This is a follow-on to their and is funded by the Health Foundation. The final report, by Peter Bradwell and Faizal Farouk (co-author of The Talking Cure) will come out [...]
Filed under: Meeting, Privacy, Society, Technology | Leave a Comment »
Dr Mohammad Al-Ubaydli
Dr Richard Smith