The Alkaptonuria Society (AKU) is a charity for people suffering from a rare genetic condition. Patients Know Best has allowed them to join forces with Royal Liverpool University Hospital to help AKU members better manage their condition. In addition to improving patient care, the charity is using PKB to conduct a multi-center research project. By putting patients in control, Patients Know Best makes it easier for patients to share their data with universities, charities and other researchers. Read AKU’s announcement on their blog.