This blog is published by Patients Know Best, a UK-based provider of patient-controlled medical records.

We have developed the world’s first patient-controlled patient portal. A number of regions over the world use our platform to share and exchange health information across their entire health economy.

Through this blog, our intention is to provide fellow advocates of personal health records with information and teachings from thought leaders on how to work with patients online.

You can also learn more about our work in our News Centre.


    1. Hi Ed,
      We do have patients in the USA using PKB, primarily for rare diseases and genomic sequences.

      There used to be US systems that tried to be patient-centric and vendor-independent, but they shut down. The last major contendors were Microsoft’s HealthVault, and GetRealHealth. We discussed the November 2019 shut-down in this blog post:


      Are you asking about bringing PKB to someone you know in the USA? Feel free to contact us on help@patientsknowbest.com to discuss this more.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s