The slides below are from a talk that Mohammad Al-Ubaydli gave earlier this month at UK’s eHealthWeek. We put them here because these slides show
Category: PKB publication
The European Business Review: first article about PKB
My first article about Patients Know Best came out in today’s issue of The European Business Review, Europe’s top business journal. The audience is important
Social networks enable patients to be more involved in their healthcare
My article came out in the Guardian healthcarenetwork today. Dr Mohammad Al-Ubaydli explains how medical practitioners can make the most out of online patient-to-patient networks
The BMA has adopted an old fashioned, paternalistic, and misguided policy by warning against patients having access to their electronic records
At the end of last week, the UK government completed its consultation on patient access to their medical records. The British Medical Association submitted its
In Search of an Optimal Peer Review System
My paper was published today in inaugural issue of the Journal of Participatory Medicine, whose editorial board includes our CEO, Dr Mohammad Al-Ubaydli. Abstract Summary:
Genomic electronic health records: opportunities and challenges
This article was originally published in Genome Medicine on 23rd July 2009: http://genomemedicine.com/content/1/7/73/
Mohammad Al-Ubaydli1 and Rob Navarro2
1UCL Centre for Health Informatics and Multiprofessional Education, Archway Campus, Highgate Hill, London N19 5LW, UK
2Sapior, 16 Byron Avenue, London E18 2HQ, UK
Genome Med 2009, 1:73doi:10.1186/gm73
The electronic version of this article is the complete one and can be found online at: http://genomemedicine.com/content/1/7/73
Published: 22 July 2009
© 2009 BioMed Central Ltd
Abstract
There is value to patients, clinicians and researchers from having a single electronic health record data standard that allows an integrated view, including genotype and phenotype data. However, it is important that this integrated view of the data is not created through a single database because privacy breaches increase with the number of users, and such breaches are more likely with a single data warehouse. Furthermore, a single user interface should be avoided because each end user requires a different user interface. Finally, data sharing must be controlled by the patient, not the other end users of the data. A preferable alternative is a federated architecture, which allows data to be stored in multiple institutions and shared on a need-to-know basis. The data sharing raises questions of ownership and stewardship that require social and political answers, as well as consideration of the clinical and scientific benefits.