PRSB and end-of-life care plans in Patients Know Best

Patients Know Best (PKB) provides care plan templates compliant with the Professional Records Standards Body (PRSB) and the Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) specifications. 

As the only complete patient-held record offering patient-centred care planning in the U.K today, we believe PKB is the best place to co-create and update care plans. 

Other systems such as EMIS for GPs, Cerner for hospitals and speciality-centred systems like end-of-life care’s Coordinate My Care, are ‘organisation-centred’ which means information is limited to the professionals within those circles. For obvious reasons, this is an outdated approach to care planning, particularly for patients cared for by multiple organisations and across county lines.

2019.11 PRSB and end of life care plans in Patients Know Best.Care plans on smartphones

PRSB care plans

Earlier in 2019, the Professional Record Standards Body released their digital care and support plan specification.

“The new standard for generic care planning, including end of life treatment, will contribute towards the creation of a more joined-up care system. Standards will also help to enable people to manage their own care, with the support of a wide range of services including GPs, hospitals, occupational therapy and social care. The standard will help citizens and health and care professionals to get the right information when they need it, in order to personalise care, and improve the experience for the patient, their carer and their families.”

This mind map provides a useful structural overview of the care plan:

2019.11 PRSB and end of life care plans in Patients Know Best.PRSB mind map


We have carefully considered these fields and added each of them into PKB, becoming the first care planning system to fully support PRSB standards. Furthermore, we have pre-populated much of the data automatically, saving professionals from always needing to manually enter data including:

  • diagnoses, medications and allergies from electronic health records systems such as EMIS for GPs
  • test results from hospital systems
  • symptoms from the patient
  • measurements from home devices
  • specialist care plans from PKB or from electronic health records systems.

To use PRSB care plans with your patients, please contact your Customer Success team project manager – set-up is free and fast.

The ReSPECT end-of-life care plan

The Resuscitation Council UK created the Recommended Summary Plan for Emergency Care and Treatment (ReSPECT).

ReSPECT is a process that creates personalised recommendations for a person’s clinical care in a future emergency in which they are unable to make or express choices. 

The ReSPECT process is intended to respect both patient preferences and clinical judgement.

The ReSPECT process provides health and care professionals responding to an emergency with a summary of recommendations to help them to make immediate decisions about that person’s care and treatment. ReSPECT can be complementary to a wider process of advanced / anticipatory care planning.

After understanding all the ReSPECT fields, we have added each of them into PKB. 

To use ReSPECT care plans with your patients, please contact your success team project manager. Set-up is free and fast.

Shared care planning only possible with Patients Know Best

PKB is the only system to provide shared viewing and shared editing. Electronic health records systems’ approach to care planning is to capture the billable information for the doctor creating the care plan, not for the patient, carers and other professionals who need to see and act on the care plan. In desperation, GPs often resort to ‘printing off’ a care plan for patients to stick on their fridge in the hope others may see it too. This is neither effective nor safe. It also means no other party (other than the original organisation that created it) can edit and update the care plan. For instance, if you create it in EMIS, only your GP colleagues can change it; in Cerner, only colleagues in the same hospital can do so etc. Of course, the patient also has no way to update or add their own contribution to the choices made about looking after their own body, nor can clinicians see data in real-time from home devices.

With PKB, anyone with appropriate consent and authorisation can have permission to see anything in the record to support patient care. They can see this in multiple ways, either by:

  1. logging into the PKB website from any device with an internet connection including a patient’s phone;
  2. using single sign-on windows embedded in an electronic health record such as in EMIS, Cerner, RiO and Orion; or
  3. by pulling the data into the electronic health record using PKB’s open APIs as app developers have done. 

PKB allows editing through the PKB web GUI, EHR SSO and open APIs. This includes data streaming in real-time from devices. PKB also maintains a medicolegal audit of all the changes and contributing authors. This is why Bristol’s Quality Trauma Discharge team’s work with shared care plans was highlighted as the gold standard by major trauma networks across the UK.

2019.11 PRSB and end of life care plans in Patients Know Best.Bristol trauma

You can read more about our work in Bristol in our recent case study.


  1. Presumably the Surrey Care Record has been suspended because they haven’t bothered with the ‘patient centred’ part of the PKB record

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