PKB’s Dr Lloyd Humphreys, vice president for business development talks to Pharma Times magazine about how the system is working across the world. A great write-up which includes the following: “The actual concept behind PKB is intuitive enough to make you wonder why there aren’t more platforms like it in the healthcare industry,” indeed so!
The leading independent provider of substance misuse services in the UK, Delphi Medical first partnered with PKB in 2014 to give their patients control of their own medical records. Patient-controlled medical records have helped Delphi patients receive continuous and improved quality of care. Moreover, on an individual level, giving patients access to their medical records empowers them and provides them the ability to actively control their lives.
Dr. John Richmond, co-founder of Delphi Medical, explains.
We want to get to the stage where we have a dialogue with our patients through Patients Know Best – that’s our ultimate aim. We want them to ask questions and interact with us because when that happens, that means they are taking an active role in their lives and are on the journey from dependence to freedom.
Delphi will be rolling out PKB to 200+ patients a year.
The day I met Dr Ron Hsu was a difficult one. I remember a room full of doctors criticising PKB. Here’s how Ron remembers it: Continue reading
Today I came across the Profit-with-purpose businesses: Subject paper of the Mission Alignment Working Group. This was written by the The Global Social Impact Investment Steering Group (GSG), which was established in August 2015 as the successor to the Social Impact Investment Taskforce, established by G8.
I was pleased to read that it featured Patients Know Best. PKB is certified as a B Corporation (part of the first group to be certified in the UK) and was previously recognised by Ashoka, the National Lottery and UnLtd as a social enterprise. UnLtd recognised and funded us as a social enterprise from our founding in 2008.
The report features PKB in the beginning as part of exploring profit-with-purpose businesses as a new sector:
To take an example, Patients Know Best (PKB) is a health informatics start-up which puts health data in the hands of the patients rather than selling it on, and which brings together all the data from different clinics and social care agencies to improve the lives of people with complex conditions. By not selling patients’ data, PKB restricts its revenue potential compared with its competitors, but it is confident that this commitment is socially valuable in protecting patients’ interests. PKB is the kind of venture than needs to move fast if it is not to be outrun by purely commercial competitors with no commitment to putting patients first. As a high-risk digital start-up, only equity investment can provide realistic risk-adjusted returns to investors. To offer equity, it needs a pro t-distributing legal structure – and to offer trust to its clients and investors, it needs to show it is fully committed to its social model. PKB is now a multiple award-winning growth venture, and an exemplar of the kind of pro t-with- purpose business which this report is all about. For more information on the way PKB embeds its social mission through its contracts, see Annex C.
Case Study 7 has more details
At Surrey and Sussex, healthcare professionals are transforming care for IBD patients by integrating PKB with the hospital’s Cerner Millennium electronic patient record. Along with specialists nurses, the new technology is helping patients manage their diseases at home and avoid A&E visits.
Dr. Azhar Ansari, the project lead and consultant gastroenterologist at Surrey and Sussex calls this “our Gutenberg moment in healthcare”.
Using Patients Know Best and our specialist nurses, we have been able to create safe patient pathways that can support people using tablet-based treatment. We started with 60 patients on tablets and now have 700. This is a significant saving to the NHS.
If a patient needs a blood test, we can order it here, create a pdf and send this to the Patients Know Best record so the patient can get the test done at his or her GP. The results are shared via Patients Know Best so everyone knows the result.
Patients Know Best, the world’s only fully patient-controlled medical records system will be rolled out to 4,500 inflammatory bowel disease (IBD) patients across the Surrey and Sussex Hospital Trust (SASH) region. Continue reading
Lots of questions are being asked about NHS England’s initial promise back in 2012 to make full medical records accessible online to patients. The project has since slowed down and the NHS is carefully evaluating the best way forward. This article featured in The BMJ describes where the NHS is now but also in contrast looks at how Patients Know Best, which is a private company that is providing patient-controlled medical records, has been successful in partnering with NHS Trusts and providing patients with digital medical records. The success is best described by “flipping the model for access to patient records.”
Mohammad Al-Ubaydli, PKB CEO:
When you digitise [medical records] this happens by institution: first via GP practices, then the laggards— which is the hospitals—but each just takes care of its internal silo and forgets the patient. Patients usually don’t go through the neatly organised care route that the government has created for them—they may go to a private GP in London, then a supermarket pharmacist in Surrey, then a hospital in Cheshire, then have a Marie Curie nurse visit.
So you can say: ‘let’s have a central database’ or you can say ‘what’s the common theme here?’ Well, it’s the patient, so why don’t we follow the patient and not the institutions.