Patients Know Best Blog

PKB selected as one of the top six start-ups in Europe

September 25, 2009 Dr Mohammad Al-Ubaydli

We are delighted to have received investment from 12 of Europe’s most prestigious venture capitalists as they chose us as one of Europe’s top six

The hottest tech out of the UK’s Silicon Valley

September 24, 2009 Dr Mohammad Al-Ubaydli

We had a great time presenting at the 10th Cambridge Enterprise Conference and Silicon.com interviewed Dawson King for a 7-part series: The hottest tech out

Patient-centered care and participatory medicine: interview with Murray Newlands

August 17, 2009 Dr Mohammad Al-Ubaydli

Murray Newlands and I met at the Traveling Geeks’ Cambridge trip on July 20th. On the day, PKB was one of the Cambridge high technology

Patients Know Best chosen as one of the top start-ups for Cambridge Enterprise Conference

July 24, 2009 Dr Mohammad Al-Ubaydli

It is great to have news like this: Cambridge Enterprise Conference chose PKB as one of the eight companies to present at their 2009 conference.

Genomic electronic health records: opportunities and challenges

July 22, 2009 Dr Mohammad Al-Ubaydli

This article was originally published in Genome Medicine on 23rd July 2009: http://genomemedicine.com/content/1/7/73/

Mohammad Al-Ubaydli1 and Rob Navarro2

1UCL Centre for Health Informatics and Multiprofessional Education, Archway Campus, Highgate Hill, London N19 5LW, UK

2Sapior, 16 Byron Avenue, London E18 2HQ, UK

Genome Med 2009, 1:73doi:10.1186/gm73

The electronic version of this article is the complete one and can be found online at: http://genomemedicine.com/content/1/7/73
Published: 22 July 2009

Abstract

There is value to patients, clinicians and researchers from having a single electronic health record data standard that allows an integrated view, including genotype and phenotype data. However, it is important that this integrated view of the data is not created through a single database because privacy breaches increase with the number of users, and such breaches are more likely with a single data warehouse. Furthermore, a single user interface should be avoided because each end user requires a different user interface. Finally, data sharing must be controlled by the patient, not the other end users of the data. A preferable alternative is a federated architecture, which allows data to be stored in multiple institutions and shared on a need-to-know basis. The data sharing raises questions of ownership and stewardship that require social and political answers, as well as consideration of the clinical and scientific benefits.