Yesterday, Ireland’s Think Ahead initiative launched phase two of their program that encourages people to plan for their end of life. We are proud to announce that Patients Know Best (PKB) is part of that initiative to bring patients a digital version to their patient medical records.
Dr. Ron Hsu said recently in his interview with NHE:
I liked the concept that we could have something that would actually demonstrate that the patient could be in charge. Mohammad’s idea, which I think is absolutely correct, is that if you empower the patient to know what’s going on, and to control who gets access to what, they get ownership. That is the moral argument; but there’s also the practical argument – they become the co-ordinator, and can spot when things are going wrong.
That concept Dr. Hsu is talking about is the program that Leicester University Medical School piloted to teach first year medical students the principle of online consultations. To read about their reflections on the result of this pilot, please see our blog from last month, Next Generation Medical Training with PKB. Continue reading
It’s well known that medical students train rigorously through case studies. The most rigorous training comes to them in their later years where they participate in hospital rounds or simulators that interactively drill them. However, this type of interactive and virtual education has now been piloted to medical students earlier in their training. Leicester Medical School has teamed up with PKB (Patients Know Best) to build a unique training program that reflects the current trends and expectations of future generation of patients and physicians.
Speaking at the Royal Society of Medicine, both PKB CEO Dr. Mohammad Al-Ubaydli and Leicester innovation team leader Dr. Ron Hsu reflected upon the development of the tool, along with the lessons and observations learned along the way. For their full commentary, you can view the entire session here. Continue reading
Recently, the NHE interviewed the founder and CEO of Patients Know Best (PKB), Dr. Mohammad Al-Ubaydli, about the concept and moral position of patients having not just access to, but control of their medical data. PKB delivers against that concept. Continue reading
End of life care is a difficult subject to approach but a necessary one. For an individual, it has the potential to save unnecessary suffering if delivered appropriately. For the healthcare industry, this can save costs. However, more importantly, it gives patients a chance to articulate their wishes with their family and friends. Continue reading
It is well known that an increasingly aging population is one of Europe’s social and economic challenges. For the health care industry this means that, according to the new report from Nesta Impact Investments, the current health care system will fail to meet the demands of the population, perhaps as soon as in ten years time. The need now is to build a system that will provide for the anticipated care and support needs, whilst delivering improved quality of life.
What Nesta found is that social entrepreneurs have already begun designing to improve informal care. Nesta analyzed twenty-five early stage ventures including Patients Know Best to understand how technology is providing the communication, support and efficiency of personalized informal care needed to lower health care costs and provide an improved quality of life. Continue reading
Patients Know Best (PKB) has a new feature coming out this month that will allow patients and clinicians to upload large data files such as genome sequencing files onto PKB. This feature will allow patients, clinicians, and clinical researchers to access the same data, real-time on a secure platform. It will increase the potential for patient-clinician-research interactions and direct more health care and clinical research towards patient-centered care.
We are working with partners like Rare Genomics Institute and Crohn’s and Colitis Foundation of America, along with academic institutes, to bring patients access to that research information faster. At the same time, real-time patient data coming onto the PKB platform, which is integrated with an increasing list of popular devices, provides clinicians and researchers with the input that they need for their studies.
Patients and clinicians, please keep an eye out for this new feature on PKB. You will find the capability to upload files under the Files tab.