There has been a lot of publicity today about the Shellshock bug, a serious vulnerability that has been found in the bash Linux shell. Bash is open source software used very widely for administering Linux servers via a command-line; it is also used for some processing in common web application architectures (and this is where the problem is most serious).
Patients Know Best’s servers were not affected by the vulnerability at any time, so there is no need to reset your PKB password or be concerned about your data due to this vulnerability.
Feel free to contact us with any questions.
Patients like Jason Murtagh love using PKB’s test results.
Before I may have sent an email with my results to one doctor but for one reason or another, that message might not have reached anyone else. Now I can post my results up and know that everyone involved in my care can see my results and can see how my condition is progressing and reacting to different treatments.
You too can access your test results, either through the PKB web site or through your PKB app on your smartphone. On the web site, click on the Health icon, and then Laboratory. Your results will be shown separated by body area, where you can directly click on the relevant area to find your latest results. For each test result, you can also view a graph that shows the history of your results of that same test. PKB further helps you understand what the test results mean by translating some of the medical terminology into layman terms and providing you with normal ranges for comparison.
PKB’s Dr. Lloyd Humphreys, a clinical psychologist by training, wrote an insightful piece in The Guardian on how giving addicts control of their medical records can aid recovery. The article mentions our work with Delphi Medical’s substance abuse treatment service.
Lloyd addresses the major difficulty that addicts face in recovery. It is the fragmented system that prevents organizations from having a single view of that person’s medical history or treatment plan.
However, giving patients control over access to their medical records solves the fragmentation. Patients, who can access their medical records, will have those records no matter where they are and who treats them. It improves communication with the patient and coordination of care around the patient. With full access to their medical records, patients are empowered to act when they recognize relapse signs. Especially for addicts, giving them full access to their medical records builds trust and confidence.
Our partnership with Delphi Medical will provide its users with full access to their medical records online and help empower them on their road to recovery.
We are excited to announce our new partnership with Tute Genomics, which will allow Patients Know Best (PKB) users to receive a full profile of all genetic data in their medical record. Thus, PKB users will be able to receive healthcare services precision-made for their particular condition, based on analysis of their individual genome sequence.
We started thinking about this when Rare Genomics staff uploaded into PKB the full genome and exome sequences of the patients they were looking after. This allowed the local clinicians looking after each child to have access to the genome and to understand better the child’s rare disease.
PKB wanted the patients and their families to also understand the meaning of these genetic sequences. It was wonderful to see a demonstration of Tute; their software is used by genetic counsellors, who are professionals in understanding genomes. It turned out that Tute’s team were also thinking about putting their tools in the hands of patients. And like PKB they loved the power of a REST API for fast integration.
The power of genomics goes beyond rare diseases. For example, not all women with breast cancer respond to chemotherapy because some lack the right gene alleles. Identifying the women who will not respond spares them the chemotherapy. Identifying carrier status in parents is important for cystic fibrosis in Ireland and for other familial diseases in the Middle East. Antibiotics like gentamicin are avoided because deafness is a rare side effect. However, this side effect is much more common in carriers of certain gene alleles. Knowing the carrier status means avoiding the antibiotic for those with a high risk, whilst also using the antibiotic to help those patients at a much lower risk of damage to hearing.
Such understanding is just the beginning of what genomics will deliver. The cost of sequencing genes is dropping even faster than the cost of computing power. That’s better than half the cost every 18 months, and better than 1,000th the cost every 15 years. Furthermore, the quality of analysis is improving at a similar rate. For all these reasons, Tute and PKB are delighted to put such analysis in the hands of all patients as cheap sequences become commonly available to all patients.
The full press release can be found below.
You can now schedule and keep track of your medical appointments on your PKB account. Click on Diary then Calendar.
We are really excited about this feature, it will help in lots of ways, especially as we add to it in the coming months.
Three universities have followed the lead of Leicester Medical School to include a course on teaching the principles of online consultations using the Patients Know Best (PKB) platform. This is due to the success of the pilot led by Dr. Ron Hsu and his innovation team at Leicester. The complete evaluation of the program was featured in a Q&A session at the Royal Society of Medicine back in March. The session was recorded and is well worth watching:
These medical and pharmaceutical schools are taking the steps to prepare medical students for the future. In his interview with NHE, Dr. Ron Hsu reasoned that:
I’m not preparing students to be doctors today – I’m preparing them to be doctors in the next decade.
Starting this month, Delphi Medical, the leading independent provider of drug and alcohol treatment in the UK, will be offering Patients Know Best to new and existing patients. This exciting announcement is a great example of patients benefiting from control of their records in a fragmented system. You can find the entire press release below.