Welcoming The Alkaptonuria Society

aku-society-uk

The Alkaptonuria Society (AKU) is a charity for people suffering from a rare genetic condition. Patients Know Best has allowed them to join forces with Royal Liverpool University Hospital to help AKU members better manage their condition. In addition to improving patient care, the charity is using PKB to conduct a multi-center research project. By putting patients in control, Patients Know Best makes it easier for patients to share their data with universities, charities and other researchers. Read AKU’s announcement on their blog.

One comment

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s