From December, PKB will let a patient know if medical records about the patient are available from the National Cancer Registration and Analysis Service (NCRAS). The patient can consent to receive the data in their PKB record. And the patient can separately consent to make their PKB record available to the NCRAS to support medical research.
This option will only appear for the patient if all the following are true:
- The patient’s identity has been verified with an NHS number
- The patient has registered so they can exercise consent
- The patient is 18 years or older so their consent is valid
The National Cancer Registration and Analysis Service (NCRAS) is part of Public Health England and aims to collect information about a variety of tumours that occur in patients living in England. This includes reports on tissue samples and scans, summaries of imaging reports, data on radiotherapy and chemotherapy, and information about hospital and treatment attendance.
Information collected by the NCRAS is used to support public health, healthcare and research and is sent to NCRAS from clinical sites across England.
Full details are available on our NCRAS help page.